Jaette’s (Siri) Story
Siri loves to be where there are people. Her favorite time is to sit like in a fast food with at least 3 to 4 people at a time. She loves music. Her life is pretty much run by music. When she's sad, I can have her become happy just by putting on a positive or major song.

Her life has been built around music.

One of the things Siri loves is when she gets to make choices.
“I want something else.”
“I want something else.”
“What do you want?”

It really brings out her character and lets us know who she is.

Rhett’s Syndrome and Siri has been a, a road I sure wouldn't want everybody to walk down. It is very hard. I mean, it’s... how can it not be hard to see a four-year-old have seizures that develop just out of the blue? A four-year-old that starts talking and stops talking all over a summer.

You just start seeing the person disappear.

We started to see more changes as our daughter was getting older.

The typical visual is their head is down and they're sleeping, and they're just not participating, they're just not there.

Her worst nemesis was the stairs that she has to come down every morning and go back up every night. She was a prisoner in her house.

It has been so difficult. But then we started a therapy with Anovo. Every month, Anovo calls and asks, “How are you doing? How's Siri, your daughter, doing? How many bottles do you have left? Is everything okay? Was the shipment all right?”

The Anovo people, they are excited to hear what's happening with her. The medication has never been late. It's never not shown up. It's never been just left on our doorstep. It's always handled very smoothly.

If I just call Anovo and ask a question, any question about the prescription, about delivery, they take care of it immediately, so there is no problem there.

Anovo does make my life easier. It makes our life easier. Thank you Anovo, and thank you so much.